Gluten-Free Diets

You Are What You Wheat: Consumers are blaming a little ol’ protein for their beset bowels, bloating and other intestinal havoc. But is gluten getting a bad rap?

This past Christmas I was, as usual, half-unwillingly roped into making 14 dozen cookies for a baking exchange. Before I’d even had a chance to browse Epicurious.com for a deceptively simple recipe that would make me come off like a way-less-sexy Nigella, I received an e-mail from one of the other participants announcing she was backing out.

Her alibi, I must admit, was more airtight than the ones I’d been contemplating.

“Sorry,” she wrote, “I can’t participate this year because of the gluten thing. I’m experimenting with gluten-free shortbread (wish me luck!) and am not eating ‘normal’ baking right now.”

Who can argue with dietary constraints, I thought at the time. Then our cookie exchange took another TSX-sized hit when similarly worded e-mails from two other rogue bakers appeared in my inbox. After that, those of us left holding the empty cookie jar decided to call off the event.

Perhaps we should have stepped up, in the spirit of the season, with a flexible, “Heck, let’s make it a gluten-free Christmas!” But, to be honest, I was a tad put out. If I was going to go to the trouble of producing my share of the holiday bounty, then traditional baking — based on good old-fashioned unbleached wheat flour — was what I wanted in return for my labour. “Quinoa” and “xanthan gum” gingerbread sounded to me about as festive as rum-less nog.

So, is it just my Scroogey self or does anyone else feel the staff of life has unfairly been given the kiss of death recently?

The wildly successful Dr. Atkins appears to have initiated this demise, scything grain from our plates (and fat from our hips), to the great joy, not only of the overweight, but of the purely carnivorous among us, who suddenly found official sanction for their distaste of all things plant. More recently, a less cosmetically motivated (and thus harder to dismiss) ban on wheat has charged the much-maligned grain with many of our internal ills, as well.

Granted, there are, and probably always have been, some people who do not thrive on wheat, but one must still ask whether the current extent of the gluten-free lifestyle isn’t largely the effect of the hand of the market, ever eager to spoonfeed consumers as much of their latest fear as they can stomach.

A Big Market for Gluten Free

Indeed, there’s a veritable glut of gluten-free products on the shelves right now: consumer goods market researcher Packaged Facts reports sales of gluten-free products in the U.S. and Canada have surged over the past year, and growth in that food category will likely reach US $1.7 billion by the end of 2010.

A cruise through local natural food stores such as Sunnyside Market and Planet Organic reveals entire shelves dedicated to wheat-free bread, banana loaves and sweet-potato cookies. (Safeway, Co-op and Superstore are also devoting more shelf space to sans-gluten products.)

All about Gluten

So, what exactly is gluten, and what is it about the stuff that apparently makes so many people — upward of 90 million in North America alone, according to the book Dangerous Grains by Dr. James Braly — feel bad enough to consider giving up their daily bread, not to mention their daily pasta, pizza, beer, cookies and myriad other consumables?

To take the former, and simpler, question first, gluten is the protein found in wheat, rye, barley, kamut and other cereal grains. Sounds innocent enough, right? Well, for the approximately one in 133 Canadians affected by celiac disease, gluten grains are anything but innocuous. A hereditary predisposition to chronic damage of the small intestine by gluten proteins, celiac disease can cause a range of health problems including abdominal bloating and all-around intestinal badness (use your imagination), headaches, fatigue, anemia, osteoporosis and infertility. The only “cure” for celiac disease is the lifelong avoidance of gluten.

But true celiacs account for less than one percent of the population, so how could three out of seven of my cookie-exchange friends suffer from gluten intolerance? Was probability skewed in my vicinity, or did I manage to hook up with a bunch of hypochondriacs? No and no — after all, who in their right mind would give up vanilla shortbread or penne puttanesca unless they were actually told to?

Far more common than celiac disease, it seems, are ailments relating to a widespread sensitivity to gluten — a largely undiagnosed affliction that, according to Braly, was the “plague of the 20th Century.” Caused by what Braly calls “gluten gluttony,” this plague is, “an insidious one that should have been recognized and treated long ago, but wasn’t . . . It remains poised, ready to harm many unwary victims.”

Sounds like a script for an especially low-budget B-movie: Cereal Killer, bowl of Wheaties plots to annihilate its unsuspecting diner. For undiagnosed sufferers like 22-year-old Gary MacLellan, however, the negative side effects of consuming gluten are truly scary.

After years of being underweight and feeling sick “pretty much all the time,” MacLellan, who lives in Calgary with his parents and six of his younger siblings, gave up gluten five years ago along with the rest of his family. The MacLellans’ self-imposed diet consists of “a lot of organic meat and vegetables — we don’t eat any grains at all, not even rice.”

Since becoming gluten-free, MacLellan has managed to gain a healthy amount of weight and claims to have more energy now. None of the MacLellans have ever been tested for celiac disease, but, says MacLellan, who admits to missing sandwiches and can’t remember the last time he dined in a restaurant, “I know I feel better eating cleanly; it seems more natural to me.”

One could, of course, argue that eating grains is natural — after all, haven’t humans been breaking bread for millennia? Well, yes and no. No, because thanks to “advances” in agricultural technology, the bread we break has been transformed dramatically in recent decades. Gluten content is greater in today’s grains because of the way those grains are selectively bred, ripened and stored — a good thing in terms of culinary malleability, elasticity and heat resistance, but a bad thing in terms of human health.

That said, lest you wake up tomorrow unjustly blaming your morning crumpet for your lifelong malaise, you should know not every expert believes gluten is guilty as charged.

Leaky Gut Syndrome

For instance, Dr. Terry Willard, clinical herbalist and founder of Calgary’s Wild Rose Wholistic Clinic and College, believes the growing concern over grains in our diets may be more than a little overblown. He regularly sees patients who have diagnosed themselves as celiac or gluten intolerant and who have come to him looking for confirmation or a cure.

“If a person is truly celiac, they usually know it by the time they are four years old because they’re malnourished, throwing up whenever they have a flour product — meaning it is a genetic disease,” he says. “Some people can have mild cases later in life, but it’s rare to have it badly late in life.” In his clinical experience, Willard has found that “about 50 percent of people who think they have celiac actually have leaky gut syndrome.”

While this theory ain’t a pretty one (“leaky” and “gut” should never appear in the same
sentence), it does offer hope for deprived gluten-lovers. The syndrome is an unpleasant state of intestinal turmoil caused by damage to the bowel lining, and exhibits symptoms similar to celiac disease. But, according to Willard, it is “almost always caused by yeast — specifically, Candida — in the digestive tract.”

Since it doesn’t have a genetic origin like celiac, leaky gut is potentially only a temporary situation; it can be relieved by changing one’s diet in a variety of ways, including staying off the flour for three to nine months in order to rebuild intestinal flora. And, unlike celiac sufferers, “many people who turn this problem around,” says Willard, “can go back to eating gluten.” Unfortunately, Willard’s position doesn’t seem to have become part of the mainstream conversation about gluten yet.

As a result, “a lot of people will go a lifetime without knowing about the Candida connection, so they don’t do anything about it,” he says.

Regardless of whose theory turns out to be right, it looks like the debate over celiac will rage (quietly) on for some time. Dang, I was hoping it would be resolved by next Christmas.

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Visitor

RE: This article is right... people are abusing the diet

Hi, You are right that this disease can cause people lots of problems. I have never liked milk and never new why I would feel like chocking after taking a dairy product. Today I am better but I still can't ignore the fact that I can't take dairy. Additionally Gluten causes me stomach aches and I do face the same problems you do when it comes to dietary issues. I may not be as serious as you or others with such a disease or problem but I do get affected. I have not been diagnosed with Celiac but like you had some tests done and found allergies to these products. The thing I find hard is that there are no products out there that are gluten or dairy free at coffee shops and other eateries. Even though this is such a big fad/diet trend.

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Visitor

This article is right...people are abusing the diet.

Not exactly sure why everyone here is harping on the author....they clearly acknowledged that those WITH CELIAC will be made very ill from gluten and that it is a serious disease that requires a strict gluten free diet. As a person with Celiac Disease (diagnosed as an adult by bloodwork and biopsy) I too am frustrated with people who do not take my condition seriously because of those who eat gluten free as a "trend". I will become violently ill and damage my body if someone does not take my diet seriously. This will not happen to someone who simply thinks eating gluten free is "healthy". So I as a Celiac actually agree with the article. I suppose I am also one of the "rare" Celiac patients, I was diagnosed with severe classical Celiac as an adult. Even a crumb of gluten will make me violently ill. The disease was not apparent at all until I was in my 20s. I did not react to gluten previously. Celiac is an autoimmune disease, and can be triggered at ANY age in the genetically susceptible, although it is most commonly diagnosed in childhood. A virus appeared to trigger it in my case. Viral infection has been implicated in many other autoimmune diseases as well. While it's great that Celiacs now have more options because of the popularity of the gluten free diet, the downside is that more people also don't take those who actually HAVE Celiac seriously now. I constantly have to pull out my medical alert to explain to people who roll their eyes and think I am making this up. Trust me, no one wants to have a disease, including Celiac.

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Visitor

Sad....

I must agree with all of the above comments. I am 34 years old have just discovered I have Celiac. I grew up in a family that refused to take me to the doctor. I was never on antibiotics until I was in my 20's. I was underweight, sick, and weak most of my life. Had terrible stomach pains my entire teen years. I became so sick in recent months that I was eating only brown rice and chicken broth. And getting sicker. Turns out the chicken broth had wheat gluten. I went to the doctor with symptoms, GI issues, vomitting, headache, nausea, blistery rashes on my arms, dizziness, and on and on. I have been extremely sick for a year. I went to the docotr only to have my doctor tell me its not Celiac because I'm slightly overweight! That's why so many go undiagnosed, because they don't all meet every criteria. It is a terrible, embarrassing, debilitating disease. And, it is not helped when people refuse to accept it as legitimate, just because you don't have a doctors diagnosis. Journalists should be writing articles to raise awareness of a very serious illness, rather than mocking it's reliability.

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Visitor

Just pointing something out

This story seems to have garnered a lot of response from individuals who no doubt are greatly affected by Celiacs but I would just like to quote from the article itself:

"Well, for the approximately one in 133 Canadians affected by celiac disease, gluten grains are anything but innocuous. A hereditary predisposition to chronic damage of the small intestine by gluten proteins, celiac disease can cause a range of health problems including abdominal bloating and all-around intestinal badness (use your imagination), headaches, fatigue, anemia, osteoporosis and infertility. The only “cure” for celiac disease is the lifelong avoidance of gluten.

But true celiacs account for less than one percent of the population, so how could three out of seven of my cookie-exchange friends suffer from gluten intolerance?"

The writer acknowledges that Celiac disease is very serious for those who have it. But many people who are choosing to go gluten free do not have it and questioning why that is.

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Visitor

Gluten Insensitivity

If you aren't going to do any research, please stick to articles about luxury condos and wine-pairings. You don't know what you're talking about at all.

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Visitor

No Perspective.

Just to be clear, this weak attempt at journalism was set off by the fact that you had to cancel a baking exchange that you were "half-unwillingly roped into", one that you were only going to barely put any effort into anyhow?

Just wanted to be clear on that.

7 years ago, I was an overweight (yes over, not under) guy who suddenly began having multiple severe daily panic attacks, and 3 different doctors assured me there's 'nothing wrong with you'. I did not have any of the 'typical' celiac symptoms.

It was only by pure luck and coincidence that I met someone with celiac disease whose pre-diagnosis symptoms mimicked my own. She told me to get tested. I did, the test was positive, and the panic attacks went away almost immediately after going gluten free.

Trust me, if I had the ability to eat a real Pizza and chase it down with a cold beer and a chocolate croissant, I would be picking those up on the way home tonight, and I would not be paying $6 for half a loaf of bread that only slightly resembles real bread when it's toasted, okay?

While there may be too many people self-diagnosing, and not being tested properly, who are 'jumping on a bandwagon', who does that hurt, aside from half-hearted, unsympathetic online baking exchanges? It doesn't hurt celiacs, because it raises awareness, and makes living our lives a little bit easier.

Do you understand how difficult it was to find GF products five years ago? Or how difficult it was to explain gluten to the wait staff at a restaurant? Of course not, because you haven't lived it.

Those of us who've been sick for days because a waitress 'didn't think you could actually be allergic to flour', or had to drive to the four corners of the city to complete a simple grocery list, we EMBRACE this 'bandwagon' with open arms! It's only leading to the awareness and presence of the foods and package labeling that have been sorely lacking for people with a genuine inability to process gluten.

It sucks that an apparently inconvenient part of your holiday baking had to be altered, but our WHOLE LIVES have been altered by celiac disease. Please learn to gain some perspective before you ham-handedly attempt to pass off a lame rant as journalism.

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Visitor

No Perspective.

Just to be clear, this weak attempt at journalism was set off by the fact that you had to cancel a baking exchange that you were "half-unwillingly roped into", one that you were only going to barely put any effort into anyhow?

Just wanted to be clear on that.

7 years ago, I was an overweight (yes over, not under) guy who suddenly began having multiple severe daily panic attacks, and 3 different doctors assured me there's 'nothing wrong with you'. I did not have any of the 'typical' celiac symptoms.

It was only by pure luck and coincidence that I met someone with celiac disease whose pre-diagnosis symptoms mimicked my own. She told me to get tested. I did, the test was positive, and the panic attacks went away almost immediately after going gluten free.

Trust me, if I had the ability to eat a real Pizza and chase it down with a cold beer and a chocolate croissant, I would be picking those up on the way home tonight, and I would not be paying $6 for half a loaf of bread that only slightly resembles real bread when it's toasted, okay?

While there may be too many people self-diagnosing, and not being tested properly, who are 'jumping on a bandwagon', who does that hurt, aside from half-hearted, unsympathetic online baking exchanges? It doesn't hurt celiacs, because it raises awareness, and makes living our lives a little bit easier.

Do you understand how difficult it was to find GF products five years ago? Or how difficult it was to explain gluten to the wait staff at a restaurant? Of course not, because you haven't lived it.

Those of us who've been sick for days because a waitress 'didn't think you could actually be allergic to flour', or had to drive to the four corners of the city to complete a simple grocery list, we EMBRACE this 'bandwagon' with open arms! It's only leading to the awareness and presence of the foods and package labeling that have been sorely lacking for people with a genuine inability to process gluten.

It sucks that an apparently inconvenient part of your holiday baking had to be altered, but our WHOLE LIVES have been altered by celiac disease. Please learn to gain some perspective before you ham-handedly attempt to pass off a lame rant as journalism.

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Visitor

Unbelievable.

To put it completely bluntly: you, Jacquie Moore, are an idiot.

May you never know the joy of being excluded from social events because you can't eat the food, the pain of international travel with no meals until you reach your destination, or the agony of spending 4 hours in the bathroom, wondering which end you should be pointing at the porcelain.

Perhaps if you had consulted a real expert on celiac disease (Dr. Alessio Fasano, maybe?), or bothered to speak to the Calgary chapter of the Celiac Society or even made as little effort as reading the wikipedia entry on celiac disease, you would have learned that it is an AUTO-IMMUNE CONDITION and no amount of _marketing_ is going to cure that!

You would also have discovered that the "typical" celiac that you describe - the sickly child - is now the "atypical" celiac. This phenomenon was covered at the 2006 celiac conference held in Calgary. If your medical experts stay current with the research being done, they should know this.

It took me 28 years of being sick almost constantly, chronic pain, struggling with mental illness and debilitating migraines, being either dismissed as being a hypochondriac or being told to "deal with it", before I even encountered the concept of celiac disease. Gee, and wouldn't you know it, these problems either miraculously vanished or diminished to a point where I _can_ "deal with it" as soon as I eliminated the problem grains.

I'd like to think you'll take the time now to educate yourself on what your friends and co-workers are actually living with and maybe be less dismissive of a very real condition, but I'm not holding my breath. Instead I'll have a delicious piece of chocolate brownie cheesecake with a 3-nut crust and fresh strawberry sauce and laugh about all the wonderful things you're missing out on because you're too wrapped up in your own little drama to try.

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Visitor

Unbelievable.

To put it completely bluntly: you, Jacquie Moore, are an idiot.

May you never know the joy of being excluded from social events because you can't eat the food, the pain of international travel with no meals until you reach your destination, or the agony of spending 4 hours in the bathroom, wondering which end you should be pointing at the porcelain.

Perhaps if you had consulted a real expert on celiac disease (Dr. Alessio Fasano, maybe?), or bothered to speak to the Calgary chapter of the Celiac Society or even made as little effort as reading the wikipedia entry on celiac disease, you would have learned that it is an AUTO-IMMUNE CONDITION and no amount of _marketing_ is going to cure that!

You would also have discovered that the "typical" celiac that you describe - the sickly child - is now the "atypical" celiac. This phenomenon was covered at the 2006 celiac conference held in Calgary. If your medical experts stay current with the research being done, they should know this.

It took me 28 years of being sick almost constantly, chronic pain, struggling with mental illness and debilitating migraines, being either dismissed as being a hypochondriac or being told to "deal with it", before I even encountered the concept of celiac disease. Gee, and wouldn't you know it, these problems either miraculously vanished or diminished to a point where I _can_ "deal with it" as soon as I eliminated the problem grains.

I'd like to think you'll take the time now to educate yourself on what your friends and co-workers are actually living with and maybe be less dismissive of a very real condition, but I'm not holding my breath. Instead I'll have a delicious piece of chocolate brownie cheesecake with a 3-nut crust and fresh strawberry sauce and laugh about all the wonderful things you're missing out on because you're too wrapped up in your own little drama to try.

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Visitor

Speechless

I can't believe this article got published- do journalists not do research into the subject they write about, anymore?

I an glad my daughter did not see this-the audacity to tell her that she is being finicky about her diet when she has no choice.

Get off your high horse and insensitivity, and check further into celiac disease before spouting off in print!!!!!

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Visitor

you are kidding......

This article is sad,sad,sad.

What can we expect from a fluff magazine?

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Visitor

Disappointed

This is a disappointing article with very little substance or research into what is being said.

Also, why is the text so small?

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Visitor

Outraged...

To answer your question, NO, the market is not to be blamed for the recent surge in consumers changing to a gluten-free lifestyle. What is it to you anyway? You don’t go around cursing all the sugar-free foods on the shelves that are available to diabetics… why should gluten-free foods for Celiacs be any different?

Perhaps you should have done adequate research prior to publishing this farce of an article. Rather than interviewing a clinical herbalist, you may have wanted to check with a gastroenterologist or someone at the Canadian Celiac Association. My sister and I are both in our 30s, have both been diagnosed with Celiac Disease, and neither of us was ever throwing up or malnourished. And to cover Dr. Willard’s bold statement, NO – we did not know we had this illness since the age of 4. Had you actually checked with the CCA or a GI clinic, you would have discovered that the symptoms of this illness are far more involved than just vomiting and weight loss. In fact, some people who have the disease do not even know it because they are asymptomatic. They find out because all first degree relatives of a diagnosed Celiac MUST be screened for the disease.

Do you really think that people with Celiac Disease avoid gluten and tell their friends they can’t ingest gluten just for kicks? How ridiculous. You think we want to be this way? Annual blood tests and bone scans, biopsies of the small intestine... oh, and say goodbye to eating out... the risk of cross-contamination is just too high. Yeah, we do all these things just so we don’t have to participate in baking exchanges.

Bottom line – Celiac Disease is a serious medical condition, and should not be treated any differently than other illnesses. It would do you well to remember that the next time someone tells you they suffer from it.

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Visitor

Outraged...

To answer your question, NO, one must not still ask whether the current extent of the gluten-free lifestyle isn't largely the effect of the hand of the market. It's only just a little LIFE-CHANGING illness called Celiac Disease. You don't go around telling diabetics that their sugar-free foods are just a marketing gimmick... why should needing to be gluten free be any different?

Perhaps you should have done adequate research into this illness prior to writing such a disgusting article, as should your good friend Dr. Terry Willard. My sister, my niece and myself have all been diagnosed with Celiac Disease, and none of us was ever throwing up whenever we ate flour, nor did we appear to be malnourished. There are far more symptoms of Celiac Disease than just vomiting and weight loss. A good resource for you to have found some factual information would have been the Canadian Celiac Association or a Gastroenterologist... not a clinical herbalist who clearly does not specialize in GI disorders such as Celiac Disease. By checking with these 2 sources, you would have discovered that there are far more symptoms, and some people can have the disease and be asympomatic their entire lives. They find out they have it only because all first degree relatives of a diagnosed person MUST be tested.

Furthermore, do you actually think that people with Celiac Disease are telling their friends they have this illness just for kicks? How ridiculous. It's not as though we want to be this way, or that it doesn't make life in general extremely difficult. Annual blood tests and bone scans, biopsies of the small intestine, taking tons of extra vitamins due to nutritional malabsorbtion issues... yeah, we do all that just so we don't have to participate in baking exchanges.

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